{"id":159,"date":"2025-11-17T21:56:49","date_gmt":"2025-11-17T21:56:49","guid":{"rendered":"https:\/\/cripsforesimsforgaza.org\/?page_id=159"},"modified":"2025-11-24T22:17:57","modified_gmt":"2025-11-24T22:17:57","slug":"alicewongforever","status":"publish","type":"page","link":"https:\/\/cripsforesimsforgaza.org\/?page_id=159","title":{"rendered":"Alice Wong was Crips for eSims for Gaza, and Everything to Us"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><em>Jane Shi and Leah Lakshmi Piepzna-Samarasinha<\/em><\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"819\" height=\"1024\" src=\"https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-4-819x1024.png\" alt=\"\" class=\"wp-image-164\" srcset=\"https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-4-819x1024.png 819w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-4-240x300.png 240w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-4-768x960.png 768w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-4.png 1080w\" sizes=\"auto, (max-width: 819px) 100vw, 819px\" \/><figcaption class=\"wp-element-caption\">ID a collage digital portrait by <a href=\"https:\/\/jenwhitejohnson.com\/\">Jennifer White-Johnson<\/a>, featuring Alice Wong, an Asian American woman in a wheelchair with a tracheostomy at her neck connected to a ventilator. She\u2019s wearing a pink plaid shirt, pink pants, and a magenta lip color. She is smiling and behind her are a bunch of tall prehistoric looking plants. Photo credit: Allison Busch Photography. She is surrounded with red-orange, yellow, and white flowers and behind it a grainy lavender shaded background<\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">When we wrote last month \u201cHow long can we keep this up? Are we going to be doing this forever?\u201d we never thought it might mean we, Jane and Leah, would be asked to keep Crips for eSims for Gaza going without our cherished friend, older sister, auntie. Alice Wong.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Jane texted Leah at midnight EST asking, <em>TW for news of a death in the<\/em> <em>community; can I share?<\/em>, hidden by the spoiler function on Signal. Leah was about to go to sleep on day 11 of healing from a hip replacement surgery, but said,<em> yes, but<\/em> <em>please tell me it\u2019s not Alice<\/em>. It was.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">We are heartbroken, in shock, and devastated. Coming on the heels of so many disabled deaths this past year or more (because what is time)\u2014Patty Berne, Miss Major Griffin-Gracy, jes sasche, Tinu Abayomi-Paul, Peta Pottinger, Leslie Lee III, and more, it\u2019s as Imani Barbarin says in her tribute to Alice on TikTok: \u201cIt\u2019s really profoundly hard watching disabled people die over and over and over again who mattered to the disability community. Alice Wong wasn\u2019t just a disability advocate, she was someone that took other disabled people along for the ride. . . .she\u2019s one of the very few people I could say I know what my future could look like as a disabled person.\u201d&nbsp; Jane is feeling confused because didn\u2019t Alice email her thirteen days ago?! Leah is feeling brain fucked because back in June Alice and them were texting about Patty Berne\u2019s death and talking about how they needed a group of surviving disability justice organizers and artists over fifty. And now here we are.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">&nbsp;We are also autistic \u201cOK WHAT DO WE DO NOW?\u201d about it all.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">It is so important that Alice is <a href=\"https:\/\/thesicktimes.org\/2025\/11\/15\/alice-wong-disability-activist-and-luminary-dies-at-51\/\">honored<\/a> and remembered. And we believe Alice would also want us to have time to fall apart, to grieve, to keen and wail.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.instagram.com\/p\/DREMDNBjnqk\/?img_index=1\">Alice<\/a> was the crip aunt and big sister of our triad. She loved us. She sent us gifts of fancy Korean tea and handwritten postcards and books and zines and stickers of bears, spoons, cats, and mushrooms. She texted us about how our cats were doing, asked Jane for advice about getting her first tattoo, and texted Leah a photo of Alice holding a koala named Stacey and telling Leah their surgery would go well on hip replacement day, a week and change before Alice died. She was the framework, the bulwark\u2014the person with big dreams and a big life who built a big framework for disabled ideas and organizing. Leah thinks of her as the person in the movement with the most executive function. Jane thinks of her as a fellow <a href=\"https:\/\/www.eater.com\/23400679\/feeding-tube-food-cravings\">foodie<\/a> and fellow \u201cgraphic design in my passion\u201d <a href=\"https:\/\/disabilityvisibilityproject.com\/2023\/11\/25\/cats-for-gaza\/\">meme-schemer,<\/a> shitposter extraordinaire who introduced her to the coolest, most badass disabled QTIBIPOC cuties across the world. Leah didn\u2019t want to write for anyone but Alice for the last eight years. Jane feels the same way.&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"1024\" src=\"https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-3.png\" alt=\"\" class=\"wp-image-163\" srcset=\"https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-3.png 1024w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-3-300x300.png 300w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-3-150x150.png 150w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-3-768x768.png 768w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption class=\"wp-element-caption\">ID: Graphic with a black background with a photo of Ernie, an orange cat peering out of a white litter box with a haunting expression. Large text in white reads, I POOP ON COLONIZERS. Below are hashtags: #FreePalestine #FreeGaza #AltTextPalestine #CatsForGaza<\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Alice was also one of the first disabled people with a big platform who came out unquestioningly as pro-Palestinian liberation and against the escalated genocide in Gaza in 2023. She did not give a fuck who had something to say about it\u2014and plenty of people did; she faced enormous pushback. Even\/and because of, being in the middle of adapting and surviving her life-changing medical crisis in 2022, she put it all on the line for Gaza.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Alice cared about us as writers, as organizers, as people who have dreams for a better world just like she did. She wanted us to thrive. She saw us as we wanted ourselves seen: as people who did things, as people who had things to say, and as people with a world to change, and new worlds to create. She gave us space to be mad writers and mad organizers in long stretches of time, deadline- and pressure-free, when life gets hard, and ample space to come back when we get up again. We were always invited back on the ride. We were never disposable to her. We all could make mistakes and grow and blossom, together.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">We were part of a constellation of disabled writers and organizers building and creating together, learning about each other across disability, neurodivergent, mad experiences, and so on. A constellation of disabled oracles, cyborgs, shapeshifters, and troublemakers that watched over each other just as we stuck it to the ableist world beyond.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This <a href=\"https:\/\/www.instagram.com\/p\/DRFwJgzkk-_\/\">\u201cconnective tissue\u201d<\/a> of care is how <a href=\"https:\/\/disabilityvisibilityproject.com\/2023\/12\/25\/crips-for-esims-for-gaza\/\">Crips for eSims for Gaza<\/a> came about in the first place: we launched our project exactly when we did, and not a moment sooner, on Christmas Day 2023, because of the space and care that she gave to each of us.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Alice\u2019s friend <a href=\"https:\/\/www.npr.org\/2025\/11\/15\/nx-s1-5609903\/disability-rights-activist-author-alice-wong-dies-51\">Sandy Ho<\/a>, <a href=\"https:\/\/lithub.com\/remembering-alice-wong-writer-advocate-friend\/\">Steven Thrasher<\/a>, and many others point out how funny Alice was and we firmly agree. We are so sad that she couldn\u2019t read this hilarious parody obit from <a href=\"https:\/\/bsky.app\/profile\/nytpitchbot.bsky.social\">NYT pitchbot<\/a>, created upon the request of Steven (because Alice also loved the account):<br><\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"482\" src=\"https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-2-1024x482.png\" alt=\"\" class=\"wp-image-162\" srcset=\"https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-2-1024x482.png 1024w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-2-300x141.png 300w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-2-768x361.png 768w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-2.png 1160w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption class=\"wp-element-caption\">ID: A circular display pic of the New York Times Office<br>\u201cNY Times Pitchbot @nytpitchbot.bsky.socal<br>To Alice Wong Foo, Thanks for Everything&nbsp;<br>You were a hero to Asian Americans, drag queens and people with disabilities around the world. May you do what you wanna do as your chariot carries you over the rainbow.&nbsp;<br>by Maureen Dowd&nbsp;<br>November 16, 2025 at 9:06 AM Everybody can reply\u201d<\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">We wish Alice were here editing this Google doc with us, the way we wrote everything we wrote for Crips together in late night crip google docs over multiple time zones, telling Jane which of her title ideas are her favourite, adding in her own paragraphs and one-liners, approving Leah using the f word, linking a definition so everyone knows where to find more information on a person or an unfamiliar concept. We wish her cats, Bert and Ernie, could spend decades more with their beloved mum, as the most spoiled feline anti-monarchy princes in all the animal kingdom. We wish we all had more days, and late nights, with Alice.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">To know Alice over the decade+ of <a href=\"https:\/\/disabilityvisibilityproject.com\/\">DVP<\/a> was to watch someone brilliant and progressive become steadily more radical. Leah remembers when Alice would say \u201cI don\u2019t know if I\u2019m radical enough to be a part of disability justice&#8221; in the early days of knowing each other, but it became clear that Alice was pretty goddamn disability justice. The stances she took against successive U.S. federal governments as they consistently abandoned disabled\/high-risk people were clear. So was her opposition to U.S. militarism. She spread the word about the expansion of Medical Assistance in Dying in so-called Canada as a threat of eugenics legislating poor disabled people to death. She pursued strategies of both building and sustaining her own disabled media empire through DVP and self-publishing, and through publishing in mainstream media\u2014aiming for maximum distribution and access while refusing to sacrifice or water down her politics or voice.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Her radicalism was nowhere more apparent than in her commitment to a free Palestine and her <a href=\"https:\/\/disabilityvisibilityproject.com\/2023\/12\/02\/why-palestinian-liberation-is-disability-justice\/\">understanding of Palestinian liberation<\/a> and the liberation of all people struggling to survive war, occupation, colonization and genocide as at the heart of disability justice. She published disabled Palestinian writers, created the <a href=\"https:\/\/disabilityvisibilityproject.com\/2024\/06\/30\/palestine-x-disability-justice-syllabus\/\">Palestine x Disability Justice syllabus<\/a> and used her creative shitposting skills to make memes like the one above. With her <a href=\"https:\/\/disabilityvisibilityproject.com\/disabled-rage\/\">#DisabledRage project <\/a>with Finnegan Shannon, she didn\u2019t hesitate to include \u201cISRAEL IS KILLING AND DISABLING PALESTINIANS EVERY DAY #DISABLED RAGE\u201d in her posters.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Some people may have sometimes initially viewed Alice as a nice Asian disabled lady, a respectable figure of inspiration porn. Alice was nothing of the sort. She was clear\u2014and became more and more brave and vulnerable about sharing \u2014 how she was a true weirdo freak who loved <a href=\"https:\/\/archermagazine.com.au\/2024\/09\/disability-pleasure-ageing\/\">pleasure<\/a> unapologetically, an Asian disabled radical and someone who was not there to make people feel better or go along with the okie doke. Alice was also keenly interested in what younger disabled people have to say, making us her teachers just as we learned from her. She knew, as she wrote in her speculative obituary, \u201cFuture Notice,\u201d at the end of<em> <\/em><a href=\"https:\/\/disabilityvisibilityproject.com\/book\/tiger\/\"><em>Year of the Tiger<\/em><\/a>, that the work long-term was for \u201cthe next generation of disabled cyborgs\u201d and oracles, and many more, to come along to bring change to the world as she has.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">One of the things that meant the most to us was viewing <a href=\"https:\/\/gazafunds.com\/\">Gaza Funds<\/a> tweet after her passing:&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cWe are reading al fati7a on the soul of our dear Alice, who will be written into the history of our liberation for her work in keeping our people connected over the last 2 years of genocide. It was an honor to experience your time on earth, ya Alice.\u201d&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"266\" src=\"https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-1024x266.png\" alt=\"\" class=\"wp-image-160\" srcset=\"https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-1024x266.png 1024w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-300x78.png 300w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-768x200.png 768w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image.png 1208w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption class=\"wp-element-caption\">ID: Image of screenshot of Gaza Funds tweet reading \u201cWe are reading al fati7a on the soul of our dear Alice, who will be written into the history of our liberation for her work in keeping our people connected over the last 2 years of genocide. It was an honor to experience your time on earth, ya Alice.\u201d and then the dua in Arabic: \u201c\u0627\u0646 \u0644\u0644\u0647 \u0648\u0627\u0646 \u0627\u0644\u064a\u0647 \u0631\u0627\u062c\u0639\u0648\u0646\u201d (inna lillahi wa inna ilayhi rajioon; \u201cto Allah we belong and to Allah we shall return\u201d)\u00a0<\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Alice was so proud of our project. Every time Jane sent her new milestones and gratitude pouring in from Palestinians on the ground and in diaspora, she would respond with a jubilant, \u201cAWESOME!\u201d Just two weeks ago, Alice beamed her appreciation at how Crips for eSims for Gaza utilized our respective skills and gifts so beautifully and has been able to keep things going so smoothly for this long, despite it all. How we did any of it at all was because of Alice, because Alice believed in us and our work, because she believed in the power of collective action and disabled mutual aid.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">It was an honor and a gift to be able to be her friends, her loved ones, her comrades, to dream this big dream together. There is a huge hole in our hearts where she was. We want another universe where she got to live to die at 96 as she wrote in her memoir\u2014living on the moon and being in an all-Asian disabled punk band. With the \u201cabolition of carceral institutions such as psychiatric hospitals, nursing homes, and prisons.\u201d With a free Palestine where Wifi runs on Palestinian-made technology.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Well, we\u2019re all going to have to make that happen still, with Alice looking over us\u2014set list direction and all\u2014always and forever. \u201cDon\u2019t let the bastards grind you down.\u201d We won\u2019t.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">From Alice Wong\u2019s \u201cFuture Notice\u201d in <em>Year of the Tiger<\/em>,<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"wp-block-paragraph\"><mark style=\"background-color:#f78da7\" class=\"has-inline-color\">\u201cInstead of flowers, donations can be made to your local animal shelter, food bank, library, or mutual-aid collective<\/mark>.<\/p>\n<\/blockquote>\n\n\n\n<ol class=\"wp-block-list\">\n<li><a href=\"https:\/\/www.gofundme.com\/f\/alice-wong-stay-in-community\"><strong>Donate to Alice\u2019s family to keep her legacy going<\/strong><\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/chuffed.org\/project\/crips-for-esims-for-gaza\"><strong>Donate to Crips for eSims for Gaza in honor of Alice&nbsp;<\/strong><\/a><\/li>\n<\/ol>\n\n\n\n<p class=\"wp-block-paragraph\">Just in the last few weeks, the three of us were exchanging texts on our group Signal chat about how we had to document how we made Crips for eSims over the last two years\u2014the internal moments, realizations, big challenges and learnings we had along the way and how we managed to work together for two years with zero internal drama and a lot of amazing blooming of our work and our connections to Palestine. Alice was enthusiastic about this idea. In her honour, we vow to make this happen to the best of our abilities. Stay tuned.&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"932\" height=\"176\" src=\"https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-1.png\" alt=\"\" class=\"wp-image-161\" srcset=\"https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-1.png 932w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-1-300x57.png 300w, https:\/\/cripsforesimsforgaza.org\/wp-content\/uploads\/2025\/11\/image-1-768x145.png 768w\" sizes=\"auto, (max-width: 932px) 100vw, 932px\" \/><figcaption class=\"wp-element-caption\">ID a screenshot of a message from Alice Wong with a pink profile pic with \u201cAW\u201d in it, with her name \u201cAlice Wong\u201d in green and the background being black, and the bubble text being dark grey. The text was sent at 5:44pm, October 28th, 2025 and received two red heart reactions.<\/figcaption><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">In grief and solidarity,<br><br>Jane and Leah&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">P.S. Please image-describe your photos of Alice when you share them! Do not <a href=\"https:\/\/www.instagram.com\/p\/DRHkqE6gJef\/\">misattribute quotes<\/a> that <a href=\"https:\/\/www.instagram.com\/p\/DRKpE7GiUDx\/\">someone else<\/a> wrote to Alice! Actually mask up like she wanted us to, the pandemic is ongoing. Take care of yourselves. Free Palestine, Sudan, Congo and your block!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Jane Shi and Leah Lakshmi Piepzna-Samarasinha When we wrote last month \u201cHow long can we keep this up? Are we going to be doing this forever?\u201d we never thought it might mean we, Jane and Leah, would be asked to keep Crips for eSims for Gaza going without our cherished friend, older sister, auntie. Alice [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":164,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-159","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Alice Wong was Crips for eSims for Gaza, and Everything to Us - Crips for eSims for Gaza<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cripsforesimsforgaza.org\/?page_id=159\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Alice Wong was Crips for eSims for Gaza, and Everything to Us - Crips for eSims for Gaza\" \/>\n<meta property=\"og:description\" content=\"Jane Shi and Leah Lakshmi Piepzna-Samarasinha When we wrote last month \u201cHow long can we keep this up? 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